So, I hadn't seen a lot of the family since "the diagnosis". I was kind of expecting it to be an emotional night. I wasn't looking forward to that part (having to be looked at with the tear-filled "puppy dog eyes"). I didn't want my presence to be a big bummer either though. It is Christmas after all! It turned out not to be too bad actually (the emotional part of it). I had a few tear-filled extra long hugs, but it didn't turn into a sob-fest or anything - PHEW! It did seem like my cancer was the elephant in the room a little bit...because no one really talked about it (but I was really cool with that). I would have been fine with talking about it openly as well. I think this blog has been helpful in answering some people's questions about what is going on with me as well, which has probably eliminated some of the questions that would normally have to be asked in person. Let this be a disclaimer: Please, if you have questions for me, feel free to ask! I have even had friends ask to feel the lump (when I was first diagnosed), and I let them. If it weren't me that had been diagnosed with cancer, I would want to know what A LUMP OF CANCER feels like too. I am pretty sore these days (from the biopsy, then the lymph node surgery, and I am swollen too - so, touching is NOT going to happen anytime soon - sorry!) See... I don't scare very easily ;)
Speaking of swollen, It turns out that I have some lymphedema as well. A type of swelling that can happen after the surgery involving the lymph nodes. My particular swelling was in my chest wall and breast (a bit in my upper arm). I had to see an occupational therapist a few times, and I was issued a compression shirt and sleeve to wear whenever possible. The sleeve was needed for an upcoming plane ride. It was so strange to be on the other end of occupational therapy treatment. Because of the lymph node surgery on my left side, I am also not allowed to get shots or have my blood pressure checked on the left side. I am technically not supposed to do any kind of strenuous activity with that left arm (like, ever again - yeah....that'll happen.) I have even heard of women getting lymphedema from a mosquito bite on that side!
A couple of shout outs!: I received a care package in the mail yesterday from my friend Michelle (she was my "upline" when I was a consultant for "Close to my heart" (scrapbooking/card-making supplies) - she is also a friend. She sent me a package full of pre-made scrapbook pages (for me to add my finishing touches, and pics to) it will be a nice distraction, and a way to focus on the "positive"-good times spent with my family. What a thoughtful gift, huh? I also got quite a few Christmas cards from friends, that included special notes to me sending me well-wishes.
I got a card (and "high school style" note) from a high school friend (Laura) too. She wrote a note and tore it from a spiral notebook (she would have gotten bonus points if she would have fancy-folded it and wrote "for your eyes only" or "K.I.T" on the outside. Maybe next time Laur. ;)
That was exactly what I needed...something quirky to make me smile. I have some pretty awesome friends!
Breast Cancer SWAG!...
OK, so I am a big fan of free stuff (who isn't, right?). I saw on another blog (someone who was also going through breast cancer treatment), that there are places that give out products, or provide services for anyone going through breast cancer treatment. So, I thought I would create a section dedicated to FREE STUFF (otherwise known as swag), for breast cancer survivors. It may be helpful for others who are looking to hook up a friend (going through treatment) with a little something to brighten their day. I will continue to add to the list of resources, as I find out about them (feel free to share a resource in the comments in this section too, K?).
- Homemade quilt for breast cancer patients: The Pink Angel. www.thepinkangel.weebly.com
(I just got mine in the mail yesterday, ^there it is, and it is so nice!)
- I saw this while Googling for free stuff. I haven't contacted them, but they seem like a great organization! They seem to offer lots of different products and services for breast cancer patients. Their website says: "We provide wigs, mastectomy and lymphedema products, massage, facials, and other pampering services, as a way to help women feel feminine and beautiful despite losing their hair and/or breasts" http://crickettsanswerforcancer.org/index.html
- Liberator Fashions. Free catalog of mastectomy bras and other lingerie. Company will see that qualifying customers get insurance reimbursement. Often no or little out-of-pocket expense for items. www.liberatormedical.com/mastectomy-fashions/pdfs/2011mastectomycatalog.pdf
- American Cancer Society. “Look Good…Feel Better.” http://lookgoodfeelbetter.org/ Cosmetics and workshop on making yourself up. Free. For women undergoing treatment. 800-ACS-2345
- Breasts Friends Hat Project. Free hats to women in treatment for cancer. http://www.breastfriends.org/programs/patient-outreach/hat-project; mail@breastfriends.com
- Caps Against Cancer. Free ball caps for patients who have experienced hair loss due to chemotherapy treatments. PO Box 38731 Charlotte, NC 28278; www.facebook.com/capsagainstcancer
- Heavenly Hats. Free hats to cancer survivors around the United States; http://www.heavenlyhats.com/
- House Cleaning: Free. Four monthly cleanings for women with cancer. In many states. www.cleaningforareason.org; 877-337-3348.
- Another site for free cleaning: http://www.cleaningforcancer.org/
- Lydia Project. Tote bag with “goodies” inside. Free. www.thelydiaproject.org/secure/requestatote.asp (FYI -I guess there is a $10 shipping fee for the bag and goodies to be mailed)
- http://www.goodwishesscarves.org/ You choose 3 different designs that you like, and they mail you one of them (beautiful scarves and head wraps!!)
- People undergoing active chemotherapy can receive little treats from the Chemo Angels. There is an application process, and you can sign up for a family member/friend to surprise them.
- Casting for Recovery is a fabulous organization which offers weekend retreats for breast cancer patients in all stages of survival and teaches them fly fishing.
- Little Pink Houses of Hope - www.littlepinkhousesofhope.org . They offer free week long breast cancer retreats on the beach for patients and their families.
- A "dome decorating" care package (According to the website a care package can include:
- Scarf, skull cap or hat
- Washable skin safe markers or body paint sticks
- Headbands and headwraps
- Sticky-backed body jewels
- Temporary tattoos
- New Testament Bible
- Love and Support from The Beautiful and Bald Movement http://www.beautifulandbald.com/request-a-dome-decorating-package/
- http://www.happychemo.com/cancer-products-freebies-and-discounts/ Happychemo.com looks like a great site. I have listed their section on freebies and discounts above. Lots of cool stuff there!
Very cool about the BC Swag. HEY, there's gotta be some perks! RIGHT?!! I am glad you let me feel your lump. Like you said, it isn't hard, so it's different than I was thinking a lump would feel like. It would be a good idea for women to know what they feel like. Many would mistake it for normal breast tissue. Yes, this is how brave my bestie is! She pulled out her breast and let 3 of her best (breast) friends feel it so we would know what it feels like and what to look for when checking ourselves. <3 Ang has a amazingly beautiful boobs. They aren't bad or to blame. Neither is she. <3
ReplyDeletePut me up for wanting to feel it!
ReplyDeleteI always thought the lump would feel like a dried pea or piece of gravel or something hard. I having been encouraging people to at least read your first postings. Thank you for a new description.
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